Created: 15 May 2019
I must declare an interest: my sister was born with profound learning disabilities. Later this year, hopefully, she will celebrate her 60th birthday. During my lifetime, I have seen far too many young people with learning disabilities die premature deaths.
One of the biggest problems is when they suffer a physical problem and have to go to A&E, or through the primary care system. If a doctor or surgeon diagnoses that individual, part and parcel of the communication is talking to them and getting a response. People with profound learning disabilities cannot do that, so doctors often issue DNRs—I have personal experience of this—on people who are perfectly capable of having a perfectly good quality of life.
Can my hon. Friend ensure that individuals who have profound disabilities have a named person from the health service who will give advice before any such decisions are made?